April 13, 2006
The hipless journey begins
Well, I survived the surgery on the 3rd and depending on your view of the knife it went well or I almost died or wanted to. The surgeon was very happy. I hurt like heck. I understand now why the Dr. is clueless about the after care. Once he cuts --- he's done. Next case. Now my Dr. is excellent and the reason for that is he surrounds himself with excellent people. He had no clue about the homecare for the open wounds but his Nurse Practicioner did. She has been a great resource. If you have to go thru this make sure and stock up on bandages that you will need at home. Don't be ashamed to ask for a bandage care package to take home. Our insurance doesn't pay for wound care products so I stocked up.
The pain has been much more severe than I expected. The say bone pain is the worst and I can testify to that. They had to cut my femur down the shaft to get the metal shaft out and then chisel the cup out of my pelvis where it had grown into the bone. The prosthesis have a pebble like surface on them and the Dr. will place it so that the bone grows into the device. That way they don't have to use cement like they once did in the "old days".
I'll go for now. Time for my IV meds and a nap.
April 03, 2006
Legg Calve Perthes Disease and Lifetime Hip Problems
I was hit by a car when I was 6 and flew down the street before landing. It was the beginning of my journey of Legg Calve Perthes and hip problems for a lifetime. My hip was pinned and angulated (medical terms) when I was 9 and by the time I was 22 I had worn my hips out and required hip replacements on both sides. Since then I have had 8 surgeries on the left hip and 10 on the right. Not always a complete replacement, but one time the stem, one time the cup, next the liner of the cup ... etc.
That brings me to 1999 when I had a partial replacement and ended up with an infection in the right hip. We found it because the hip dislocated twice shortly after the surgery so after the second dislocation, the doctor opened me up and found the infection. They cleaned me out and I was on IV antibiotics for 6 weeks and on Cipro for 6 months after that. Since then I had one surgery on the right hip to replace the cup in 2003. I had to go to Chicago because my surgeon moved to New Mexico and I was too complicated. ( I live in Cincinnati.)
Last February 2005 my hip started dislocating. It dislocated 4 times before my doctor in Chicago went in and put in a locking ring to prevent dislocating at the end of June. By July 4th I was hospitalized locally for hip infection. My doctor. didn't want to operate so i was left floundering. My infection got so bad I nearly died. In September my family doctor found an infectious disease doctor locally and he put me in the hospital on Thursday and they took most of my hip on Monday. They couldn't remove it all because the stem and cup had grown into the bone too strong to easily come out. I have been on broadband IV antibiotics for 6 weeks. They tried to put it back in in January but it was still showing infection so I was closed up for another 6 weeks of different IV antibiotics.
Next Monday April 3rd I go back in and the Dr. will cut my femur and drill out the stem and chisel out the remaining cup. They will leave the hip out for 1 year. They have given me no information about what to expect, I think because they reallly don't know. I felt that I need to share what I am going through because I haven't been able to find any information about this from the patient's perspective and what to expect day to day.
Thank you for reading.